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CFRI conference.

Publication: The Exceptional Parent
Publication Date: 01-OCT-02 		Format: Online - approximately 1091 words
Delivery: Immediate Online Access
Full Article Title: CFRI conference.(Cystic Fibrosis Research Inc.)

Article Excerpt
When I went to the Cystic Fibrosis Research Inc. (CFRI) conference in San Jose, California, on August 10, 2002, I brought along my husband, Dave, who himself has cystic fibrosis. The women at the registration table all marveled at how healthy he looked and sounded and at his advanced age, 36. They gave him a name tag that proudly read "CF Adult."

Then one woman asked if Dave was cleared to attend. Each person with CF attending the conference is required to submit a medical release indicating that s/he has never tested positive for Burkholderia cepacia, has not tested positive for methicillin-resistant Staphylococcus aureus within the past two years and is currently not culturing any bacteria resistant to all antibiotics. Although we were sure Dave was clear of these bugs, we did not have proof. So Dave spent the afternoon at the hotel pool while I attended the seminars.

If you've ever been to a CF conference or event, you'll understand why...

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